November 12, 2013

Honestly, I am praying for an uneventful week with no hospital visits or bad news.  As most people are aware, my cancer has progressed and is now in my spine.  There are multiple tumors in the majority of my thoracic spine, too many to count.  One in my lumbar and also my sacrum.  I started my new chemotherapy yesterday.  They had a difficult time finding a vein to use.  Since my  breast cancer is on the right side, they always have to use my right arm for the infusion.  They tried so many spots from my hand all the way up to my elbow.  Finally, someone else came in and dug into the inside of my forearm and got a vein, as I screamed as loud as I could.  My infusion took 5 hours, so to have my arm in that position with the catheter in my arm was awful.  I also had my labs done for my genetic mutations to see what, if any, cancer genes (including BRCA1 & 2) I may carry.  I won’t get the results for about 2 weeks.  Scott was with me yesterday, although I had a very emotional time while I was there.  I kept crying periodically.  The nurses were looking at me different this time, as I had to sign consent forms for my SIXTH different Chemo, because of the progression of my cancer.  They all know my story, my life, my kids.  It was almost like they didn’t know what to say to me, I’m sure me going through boxes of tissues didn’t help.  On the flip side, my breast tumor is SO much smaller, less than 1 cm.  I get to meet with the breast surgeon again in January to schedule the mastectomy.  Right now, I will have my chemos 0nce a week.  I had all three yesterday.  I will have just the Taxol every week and then all three drugs every 3 weeks.  They also give me Steroids, Benadryl and Pepcid, all IV, to help with the allergic reactions and side effects.  As you can imagine, my veins hurt after all this.  My doctor was hoping to wait to put the port in my chest but she thinks it might be sooner than later because my veins are not cooperating any more, especially now that I go once a week.  I will have all my organs and total body bone scans in 6 weeks and will be praying with everything I have that there will be no more progression of the cancer anywhere.  My last scan showed the liver tumors appeared to be decreased in number and size, although it was a scan of my lungs and didn’t get the whole liver in the picture.  I will patiently wait until the middle of December for all the scans and hopefully get some good news for Christmas.  I have to admit, I can absolutely feel the difference in the change of Chemos.   I was on such a heavy dose before, that this one feels like a walk in the park.  I feel okay today.  I have no significant pain, headache or nausea.  And no fevers, finally!  Just some fatigue and weakness, which is partly my body being so deconditioned and the weight I have lost.

I just wanted to give a quick update on my status, I’m sure Scott will post later and recap the weekend.  I hope everyone has a great week 🙂

Love, Jess

4 thoughts on “November 12, 2013

  1. Hi Jess All my Energy is being sent to you!! You are from STRONG genes! You will get threw this it is! Yes the port is much better than the veins. Keep the tissues handy it is ok to cry .Love Love Love you .Be Well I can be to your house in a heart beat and a FB message Ok Please don’t hesitate to ask Linda

  2. Glad to read the new chemo is a little easier on you. I hope the port will make your visits a teeny bit easier. Get the rest when you can and feed your body with all the good things you’ve been doing and hopefully you will start feeling a little better. Your positive attitude will help and of course you have to get your crying out too- it’s good for you 🙂 my family and I think about you often and pray for healthy news and just easier days all around. 💜💙💚💛🍀🙏

  3. Hi Jess,

    Dianne R. shared your blog with me recently and I wanted to let you know you are in my thoughts. You are clearly a very strong woman and are handling these challenges with grace and guts. What an inspiration you must be to your girls!

    If you are interested and up for it, I would be honored to offer you reiki. I am a level 2 practitioner, so I could give a reiki healing from a distance or come to you for an in-person healing wherever you’re most comfortable (of course either of these would be complimentary). If you think this might be helpful for you, or you’d like more information about reiki, please shoot me an email any time.

    Take care,

    Melissa P.

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